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75 - Myasthenia Gravis, Chronic Illness & Redefining Identity - Bolty's (Sarah Bolton) Story

  • 21 hours ago
  • 23 min read

Becky Miller: Welcome back to Autoimmune Adventures, the podcast where we talk honestly about life with chronic illness, the challenges that come with it, and the ways that we learn to live fully and boldly anyways, today we're joined by Sarah Bolton, who goes by Bolty. Bolty lives with myasthenia gravis (MG). A rare autoimmune neuro uh, neuromuscular disease, and she's also a coach and advocate who supports others navigating life with chronic illness.


This conversation is about what it really looks like to live with MG, how identity can shift after diagnosis, and how we can design lives that work with our bodies instead of constantly fighting them. Bolty, we're so glad you're here. Welcome to Autoimmune Adventures.




Sarah Bolton (Bolty): Thank you so much for having me. I'm so excited to have this conversation with you all.


Stacy Griffin: Alright, let's start at the beginning. Can you share what your life looked like before MG and when you first realized something wasn't quite right?


Sarah Bolton (Bolty): Yes. So I have been living with symptoms for about 10 years and I wasn't diagnosed for about four years after having symptoms. So I think it's been about 10 years.


And officially, I've only had a diagnosis and a better understanding of what was happening for the last six years or so. Uh, so at that time when I started having symptoms. I worked in the restaurant industry as a server and bartender, uh, hospitality. I worked many years in the hospitality industry and I had also finished, I just finished cosmetology school, so I was assisting at a salon.


Learning the ropes and doing hair, and I also had a face painting business where I did a lot of children's parties, did some princess parties where I cosplay as different princesses and characters. And so I had those three things going on. I've always enjoyed. Kind of a wide variety and constantly learning and growing and trying new things.


And so, uh, at the time, I, my symptoms showed up just sporadically in different ways. And so I, it took me a minute to connect that maybe all of these things were related and, uh. The first thing that I noticed, uh, I started getting a drooping in my eye and I still experienced this symptom and my medication helps.


So, uh, just one of my eyes would droop and I felt like I was constantly trying to open my eye. And this eye for some reason wouldn't open fully. And I kind of chalked it up to being tired or, um. I wasn't sure what, uh, and there was some blurred vision happening, double vision. And, uh, originally, uh, people, my doctor had told me, you should go see an eye doctor. Maybe you need glasses.



Sarah Bolton (Bolty): You know? Yeah. Maybe I'm like straining my eyes. I went to see an ophthalmologist and I could read the eye chart just fine, uh, even down to some of the very last lines with the small little letters I could see fine, just, it would just happen once in a while that the drooping and the vision problems.


Um, also in a different, different context. Uh, my hands, like when I was at my, uh, princess parties, I had to do a little song and dance number and I couldn't fully like, extend or open my fingers all the way. Um, another time at the salon, I was in a blow drying class and I was a pretty new stylist at the time.


And so, uh, when I was blow drying, we were practicing on our mannequin doll heads and I was blow drying with a round brush, and the blow dryer just felt incredibly heavy. The round brush, I could barely pull it through the head. I threw the hair and uh, I didn't know what was going on. And I think that's the scariest part, is not knowing what's happening.



Sarah Bolton (Bolty): Um, another time at the, a restaurant, uh, a few, a few different times this happened where I would be bringing out trays of food or drinks, and all of a sudden my hands and arms would feel incredibly weak and like I was, I, I actually did drop a tray a couple of times and, uh, I couldn't open up a wine bottle for my guests at the table who had ordered some wine with dinner, and this was something that I had done a bunch of times before. I'd worked in the service industry for 15 years, so it wasn't that I didn't know how to open a wine bottle, it was like, I literally physically couldn't grasp, uh, the, the wine key or the, the cork. It, it wouldn't, my hands wouldn't work. So little things like that started showing up.


Becky Miller: MG is often misunderstood and frequently misdiagnosed. Um, could you tell us a little bit about your specific diagnostic journey? Like how, um, how they figured out what it was and kind of the emotions that came up for you at that time?


Sarah Bolton (Bolty): Yes. So to give some context, they often call myasthenia gravis "the snowflake disease," because like a snowflake, each snowflake is unique and with MG symptoms show up very uniquely with each person. So some people experience a lot of the bull bar symptoms, like with their not being able to hold their head or neck up. Um, some people experience just ocular myasthenia where they just have, um, the posis in the eye. Um, I. I, I think if it started with my eyes, it, it definitely has moved into generalized myasthenia for me.


So like I mentioned, I was having symptoms for about four years before I got the official diagnosis, and I think. Having a diagnosis was actually a bit of a relief because I had an understanding I could name what was happening to my body. And before that it was like, it was scary because I didn't know what was going on, and I didn't have a name for it. I didn't have a treatment or medications that I could try to help manage.


And so, um. I had been having all of these various symptoms and I had gone to the doctor. You go to the, your primary care doctor and then, "Uh, oh. Well, I don't know. This sounds like, uh, an ocular, uh, kind of an issue. Go see an eye doctor, an ophthalmologist about it."




Sarah Bolton (Bolty): "Uh oh. No, we can't help you here. We don't know what this is. This seems like a neurological issue." "Oh, maybe it's, uh, your hormones, or maybe it's... let's do blood work. Let's run, you know, labs." Uh, so. Being shuffled back and forth to different doctors and then having to wait for a referral from one doctor to go see another doctor, and then going to see some of these specialists.


The amount of, uh, wait time was often long, like they're booked out for six months or a year. Uh, so in the meantime you're still like, well, I am still dealing with all of these symptoms. What, what do you do? And um, also the financial costs. Every time you go see a doctor, there's a copay. And when you go see a specialist, like an $85 copay every time you go see a doctor, and it was really frustrating going to see doctor after doctor being shuffled around and, "oh, I don't accept this insurance." Or, you know, finding a specialist who is the correct specialist, who knows what might be happening, who also accepts your insurance, who also is accepting new patients, you know? Um, it's really exhausting and draining in many ways.


And so, uh, I remember going in, I, I'd done plenty of blood work. I'm like, sure, take my blood. Like, do what you need to do. I just need to get to the bottom of this and figure out something is not right. And, uh, they did a test on me where they placed these electrodes, um, on my face and down one side of my body.


And they, I don't know what they zapped or shocked, did some zaps and, um, they, the test came back normal and at that point, the doctor made a comment to me that he, he told me essentially that I should be grateful because I was engaged and getting married and I didn't want him to tell me that I had some terrible disease.


Why don't you just be grateful? And I about lost it. And that was kind of a turning point for me that, oh. This guy, um, isn't listening to what I'm saying. And I started to get angry and I'm grateful that I got angry at that point, because I started advocating for myself stronger and, uh, demanded that they run more tests and get to the bottom of this.



Sarah Bolton (Bolty): "And I am sure that something is not right. And yeah, if you won't help me, then I will go somewhere else." Sure enough, they sent me, they said, "well, I guess we could do some more blood tests. "And I was like, "What? Send me to the lab." I went to the lab that day and then, uh, the next week they had scheduled me for a follow-up appointment, for a follow-up appointment for the following week.


They called me. The day before my follow-up appointment, the receptionist and the receptionist said, "Hey, are you gonna, we're just confirming that you're gonna be at your appointment tomorrow. It's really important that you show up." And so at that point I knew that they had found something, which was great.


Alysia Thomas: Yeah, it's exciting in a way to get a diagnosis. It's also a relief. It's also scary. There's so many emotions that come along with it, especially when you've been through the runaround that you went through, which I would say is a extremely common story we hear from people who have been diagnosed with autoimmune disease. We've each had that happen to us.


Um, so when you got this diagnosis, how did it change the way you saw yourself and did you? Experience grief for who you were before the diagnosis. Like having, having a dude patronize you and be like, "you should be grateful you're getting married," blah, blah, blah. Like all of those things coming together. What, what did that feel like for you?



Sarah Bolton (Bolty): It really got me thinking, what does my relationship status have to do with my health outcomes and like nothing. And um. So that was, that was really frustrating and I know that I'm not the only one who has experiences like this being a woman. Uh, also being young, I was 28 when I was diagnosed and like about 25, when I was 24 or 25 when I started having symptoms.


And so. Um, they're like, look at me, and, "Oh, you're young. There's nothing wrong with you. Quit complaining. You're fine. You don't look sick." All of that. Um, and so when I, the diagnosis, actually, it was a nurse practitioner who, uh, talked to me and shared with me the blood test results. And he said, "Well, there's bad news and there's good news, and there's bad news, and there's good news."


And I was like, "Okay, just tell me what I need to know." And he said, well. "The bad news is that we found, uh, evidence in the blood work that shows that your antibodies are elevated, and so we can diagnose you with myasthenia gravis. The good news is now we know what it is, so there are medications that can help. The bad news is the medication that I'm going to prescribe to you now, uh, one of the side effects is loose stools."


And at that point I jumped in the air and I said, "Yes!" He stared at me and was like confused and I just said, "I like, thank you. I would like the medication, please, if it will help my eye stop drooping. Uh, I don't care. I will try it. If I have to wear a diaper or something, I'm, I'm willing to give it a try." Um, the muscle issues were that bad that I just wanted some relief at that point.


"Um, yeah. And then the other bad news was, well, now we know what it is. There are treatments and medications, but there is no cure for this. So this might be a lifelong thing that you're dealing with. "



Sarah Bolton (Bolty): And so, uh, to bring it back to your question about the identity shift and grief, uh, I think it took a minute for the diagnosis to kind of like set in, um, come to this acceptance, and then the, the reality that, oh, wow, my life is going to look different moving forward.


And there is so much grief and I don't think that is talked about enough that it's the loss of the life that we thought we would have.


Becky Miller: Yeah. Well, and you mentioned a lot about how it impacted your work, and I know all three of us here have had similar experiences. You know, I, I know for me personally, it was, it was like a progressive thing.


I was working full-time, found that I couldn't handle working full-time anymore, had to go part-time and yeah. Um. Went down to part-time, and then like you said, you have these moments where you're like, wow, I can't even do that. Like certain things in your job. I was working with kids, and I had a couple kids get in a scuffle and I couldn't physically get up fast enough to separate them.


I was very fortunate that I had one of my group leaders that was under me, that was on the other side of the room that was able to stop the kids from hurting each other. I had that really bitter realization of if my group leader hadn't been right there at that moment, I would not have gotten to those kids in time to prevent somebody being hurt, you know? And, and knowing that I just physically couldn't do the job that needed to be done.


And so, like you were saying, whether it's a bottle of wine or dropping a tray or whatever, um, do you mind sharing with our audience, because you found ways to. I think all four of us did found ways to create career options around working from home and working around your abilities and your energy levels, I guess.



Sarah Bolton (Bolty): Yeah, so I think you really nailed it spot on coming to terms that, Hey, I don't think I can work full time in this capacity. And so, uh, I used to get caught up in like, what I can't do anymore. And there is a lot of grief in that and I needed to process that. And I've worked with a therapist and coaches and, uh, kind of come to an acceptance that, yeah, my life may look different and that's okay.


And, uh, once I had processed some of those feelings and emotions, I was able to look and shift my focus and think about, okay, if I can't do that the way that I was doing it before, maybe I could shift and do something slightly different. Maybe there's an adjustment or an accommodation that could help me continue on. Or like you said, maybe there's a part-time option. That's what I can manage right now. Um, maybe there's a entirely different line of work that I'm more suited to now at this point. So for me it was. Less physically demanding jobs.


Uh, working in a restaurant, you're on your feet all day long, running around. And that unfortunately was too much for me. Uh, my face painting business. I continued it and that was my own thing, so I could schedule myself in a way that I knew I wouldn't be. Over exerting myself. Like I would only take on one gig per day, or, you know, uh, I can only do a two hour event. I can't be at an all day festival for, you know, I, I need to have breaks.


Uh. I personally take naps often in the afternoon, because my body is tired around three o'clock. And so, uh, I also have found remote work, you know, since the COVID pandemic. Uh. Luckily there have been some shifts to more online, like we're having a conversation virtually right now. Um, there are jobs that people are able to do that just require them to be at a computer and you don't have to commute into the office and maybe work part-time hours and maybe you schedule your meetings at certain times a day when you know that you're typically feeling better or have more energy. Do your hardest work like first thing in the morning, and then give yourself lighter assignments in the afternoons or it. It all depends on your specific situation and your body and what you're dealing with.



Alysia Thomas: It sounds like you have put a lot of thought into, well, you, you've, you've had to do this for yourself and you, you just gave us all, a whole lot of things to think about. I think that there are a lot of people that are listening to our podcast that are probably in jobs right now that are not the best for their physical or mental health.


And, um, we are, we are proponents of, um, adjusting your life so that you can be healthy and enjoy the life that you do have. And I think that when it comes to careers, that is one of the hardest, scariest things to make a shift when you, you having to recognize that your body is not going to be capable, or if it is capable, you're pushing it too hard, you're gonna make yourself sicker or yeah, you know, like, we've all had to get to that point, the three of us, and you yourself, um, on these different journeys. And I think that you just listed a whole lot of ways that people can think about it. Okay, what could I do?


Because especially, I mean, where I, where I worked, I worked with women that were probably, you know, 20 plus years older than me. And it was a hard job. It was a hard physically taxing job. I kind of liked that. I was active and moving. That was good. But, oh, it hurt. I hurt so bad and I thought, I don't wanna be doing this in 20 years. This is gonna put me in my grave. I couldn't do this. So there are options, right? There are options for people.


We need to be willing to look at those options. We live in a world with so many modern technology and advancements that we don't have to be stuck doing something that is going to negatively impact our health. But it takes work. It's, it's a hard change to make and you have to really look. So how did finding work that fit your body and your needs help you rebuild confidence and rede, and like redefine what success looks like for you?


Sarah Bolton (Bolty): Yeah, this has been on my mind. Recently as well. Thanks for bringing this up. Um. So I also have a pet sitting business here in the central coast, and again, it's something that I can do. I know that I don't take on pet clients who require 10 mile walks every day, or, you know, I, I love going on walks with my doggy clients and I, I know I don't take on too much work.



Sarah Bolton (Bolty): I don't wanna be running around to too many places and causing myself stress and, and so I always go and meet the clients, do a little meet and greet with the dogs and cats and pets that I watch and make sure that we're a good fit before I agree to anything and. Um, that has worked really well.


I am able to stay with pets. Uh, in people's homes typically, and, uh, giving them peace of mind and they wanna go on vacation or they're away on a work trip and they want someone that they can trust to look after their, their pets in their home. And so that's something that I can do. Uh, I am reliable to do that and I, I had to be okay with living my life in a way that is kind of off script or non-traditional, non-conventional. I still find myself from time to time. Um, people will ask, "Oh, when are you gonna get a real job?" And in some ways it's, uh, when I worked in the restaurant industry, I kind of got that, uh, narrative. "When are you gonna get a real job?"


And so in a way it's kind of a similar thing, but now it's for a different reason. It's no, I, I physically am not able to do some of those things that I was able to do. And so I'm creative and I'm resourceful and I'm finding my own. And forging my own path. And you know, the people that make these comments, um, I'm not responsible for them or what they have to say about it.


I get to design my life in a way that works for me. And that's, you've mentioned that as well, designing your life. And that's something I learned from working with a life coach and how I got into the coaching space as well. I thought that was such a cool concept. You're not just living life by default. You are actually designing a life that works for you, a life that you love, and you know it works with your body as well.


Alysia Thomas That's so empowering.


Becky Miller: It is. I think, Stacy, you are a very good example of having to restructure your life in a way that was hard at first, but you actually found you are happier now, and you know...


Stacy Griffin: It is interesting how in life sometimes. You are forced to make a decision and that actually ends up opening up something that brings you a lot more joy. I loved being a teacher. I loved it. I loved working with the kids, but all of the, a reman that came with it was exhausting. If it could have just been me and my students, I probably could still do it, but it's not that simple.


No job ever is. There's always all the other things you have to do. So I'm gonna ask you a question that I was asked by someone else when I first became a coach, which is what would you say to someone who knows their job is hurting their health, but is terrified to let go because it feels like their identity and security are being destroyed?



Sarah Bolton (Bolty): Yeah, this is a great question. The identity piece, I think is the one of the strongest, um, most difficult to kind of break from. And I, I think Americans in general tend to be really identified with their career. It's like when you meet someone, one of the first questions people will ask is, "What do you do?"


And so if you have done something all your life and then suddenly you don't do that thing or you can't do that thing. It's like, who am I? Um, it becomes kind of this identity crisis. I don't know who I am without my work. And I think the same thing goes for a lot of people who retire from their long careers. Once they retire, they feel a little lost. Like, who am I now? And so, uh, coming to this understanding that I am not my career, I am not, um. How I dress, I am not what I look like. There's something at our core, our essence, that that's who we are. Not all of this other stuff, where we live, the jobs that we do.


Um, yeah, there's so much more to our identity.


Stacy Griffin: I would agree. I think that people don't understand that we are not our jobs. We are who we are. And who we are is still very valuable. And we still have so many things, maybe even more amazing things that we can do than we might currently be aware of in our own lives. So thank you for sharing.


Becky Miller: Okay, Bolty, so you now work, you said you work as a coach supporting other people with chronic illness, and could you tell us a little bit more about that?


Sarah Bolton (Bolty): Yeah, I would love to. So after I was diagnosed, I. Started looking around for resources that could support me and uh, I had found different support groups, and I attended some support groups and that was such a breath of fresh air at that time.


Uh, just having conversations with other people that were talking about their experiences, and I was like, wow, I'm not the only one. Sometimes it feels so isolating, like we're the only one this is all happening to, and there was a lot of comfort in knowing that there were actually other people who were having a very similar experience.


I'm not the only one, and. I, I found a wonderful community of new friends that could get, could understand and relate, and I didn't feel like I had to explain myself to them. They just got it. You know how I feel talking to all of you too. I can just tell that I don't have to over-explain or justify or prove myself.


It's just like, "Yeah, we get it. We understand." Um, and so, um, what I found after a while of going to support groups. I think it was a lot of people who had been kind of recently diagnosed. And so the conversations tended to get a little caught in the, I call it like the poop soup, where uh, we're kind of just like venting about all of the stuff and we're still processing what's actually happening, and so after I had been through my coach training, I, I found so much value in working with a coach myself and having the forward focused conversation. It's like, okay, we can acknowledge all of the stuff that we're dealing with. A lot of really big challenges in our lives. We all face different circumstances and we have a choice. We get to decide who and how we will be about the circumstances in our lives. And that was super empowering for me as well, with designing our lives in a way that works for us. So we get to choose how am I gonna be about this?



Sarah Bolton (Bolty): And I wanted to bring some of that forward focus conversation to the MG community because, uh, I was like, oh, this feels like I could just see new possibilities. And it felt really empowering and inspiring and like, you know what? I'm gonna live my best life despite all of this that I'm dealing with, and I want others to come to my party and, and get in on this magic as well. And so, uh, I put together a proposal and I brought it to the Myasthenia Gravis Association and we have been collaborating. Um, Allison Boss has been such a delight to partner with and, uh, we've been working on this together and we have, uh, some, a generous grant from some sponsor companies, and we've been able to offer this program. Uh, it's a six month virtual program, so it's accessible for anyone.


Uh, they can be on their couch or in their bed or wherever they are in their pajamas. That's totally cool. And it's a, a group that is meant to, it's called Designing Our Lives with Myasthenia Gravis. And so it's like, it's like what we've been talking about. Um, yes, we, the people in the group, we're all people living with MG and we all understand the challenges that come with that.


We get to choose how we're gonna be about it, and we get to work on our own unique projects. So whatever is important to each of us, we get to design a little treasure map, and I call it the snowflake treasure map. And. Each person's is different because we're all working on different things in our lives, and for some people it's just, uh, how can I have a better morning routine each day?


Or some people it's, I wanna finish writing my novel that I had started and didn't get around to. Or how can I get through my workday in a way that works better for me? All different, all different projects that people are working on.


Alysia Thomas: It makes me happy to hear that because you are clearly of a similar mindset to us. We started this podcast for the same reason you felt driven to do your program. Like it's not all doom and gloom and, and we can get stuck in it 'cause it is hard living with autoimmune disease or chronic illness. It is hard. There is a lot of nasty, ugly parts to it. But it's not all that way. And I love that you decided to take that and use your creativity and your natural talents to bless the lives of other people that are going through the same thing that you are going through.


And we, we started that be when you said it's isolating, I was like, oh my gosh. Yes. That is why we started this. We started this podcast because it is isolating. It is hard. To have to completely rework your life and sometimes your job, your relationships, sometimes where you live, like there's just so many things that have to be done.


It can be overwhelming and it's easy to get stuck in the negative. It's really easy to to like get on the pity party train and just ride it. And we wanted to create a place where we could talk openly and honestly about the challenges, but we love having people like yourself on, because they're, I mean, we've just interviewed the coolest people who are saying, "Yeah, this is, this was rough. This was rough, but this is the cool stuff I'm doing now. You know? And I love that. And to me, it seems that you have used this as a creative outlet almost to. Support yourself while you are dealing with chronic illness and I, I love that. It makes me very happy.


Stacy Griffin: Alright, Bolty, so if you could change one thing about how chronic illness is viewed or talked about, what would that be?


Sarah Bolton (Bolty): Narrowing it down to one thing because there's a lot of things I think I would change...


Stacy Griffin: Or take your top three. Either way.


Sarah Bolton (Bolty): Yeah. Yeah. I'll just start riffing and see what comes up. Um, so we talked, we were talking about the identity shift and um, I've kind of gone through different phases of this, where there was kind of a, a denial at first, kind of like the stages of grief.


I, I was kind of in denial and when I finally came to an acceptance, like, oh, I, I live with a disability. And, uh, that, that term, uh. It's, I, I feel mixed feelings about it. Like part of me is like, yeah, I should own it. I'm a disabled person. And then part of me is like, yeah, but maybe you're just a creative person and these are just some challenges that you're dealing with. And, and so I've just been choosing to live my life and. When MG symptoms, when I am experiencing symptoms, I'm just like, okay, yeah, that's what's happening. But I don't have to have the strong emotion about it. Like it doesn't mean it's not a good or bad, or right or wrong, it just is, like having these symptoms.


Okay. And coming from a place of curiosity like. Hmm. What is my body communicating to me right now? Or what do I need today? You know, maybe I need to go take a nap. That sounds like it would serve me well. Or, oh, I notice I'm feeling a little hangry. Like maybe I should go have a snack. Um, my body's communicating something to me.


Maybe I overexerted myself and I need to take it easy or um, maybe I need to find a different way to do something because the way that I have been doing it isn't working well for me. So tuning into my cre, creative side and being resourceful and not relating to myself as disabled as though something is wrong with me, but disabled as like, oh, I'm a, I am really creative and crafty and, um, I've gotta just go with the flow because, you know, I, it's unpredictable how my body might be feeling today and that's okay. So having a lot of self-compassion as well. Patience and understanding and, and also offering that same compassion to other people too, because I don't know what anyone else is going through in their lives.


And treating people with kindness, I think is what it comes down to, ourselves and others. Treating ourselves with kindness.


Becky Miller: Um, I guess as we're getting ready to wrap things up, do you mind sharing with our listeners where they can find you and if they wanna contact you about coaching, and best place to find you.


Sarah Bolton (Bolty): Sure.


Stacy Griffin: Tell us about the bizarre, tell us about your bizarre, because I think that's, that's something that a lot of people would like to know.


Sarah Bolton (Bolty): Okay. Yeah, my, my Instagram handle is Boltys Bazaar and, uh, a bazaar is a marketplace and I, as a multi-passionate person, I have a lot of interests and hobbies.


Instead of compartmentalizing into each thing that I like to do, I'm like, what if I just shared about my life as if it were just a marketplace of ideas or a marketplace for possibility? And, uh, so that's my Instagram handle. You can dm me on Instagram. Um. Yeah. As far as coaching, I have this group through the MGA that you're welcome to check out.


The MG association.org is the Myasthenia Gravis Association, and under the programs tab you'll see the Designing Our Lives with MG Group. Uh, this, uh, group is a six month cohort that I lead once a year. So, uh, the next cohort is starting up in. Just, uh, next month actually, so very soon. But you, you're welcome to hop on the wait list for next time.



Sarah Bolton (Bolty): If you would like. Um, as far as personal coaching, I do one-to-one personal coaching as well. Uh, and it's not just limited to people with, uh, chronic illness or autoimmune disease, and I have that experience. So if that is you. I'm happy to have that conversation. Or if you just wanna say hello. I'm always open to meeting new people and hearing other people's stories and just creating more connection in the world.


Sarah Bolton (Bolty): Well, Bolty, thank you so much for sharing your story, your insights with us today. Your honesty about living with MG and the identity shifts and designing a life that truly fits your body is something that I think a lot of people need to hear. So for our listeners, we will be sure to link everything that Bothy is working on in the show notes so that you can connect and learn more.


As always, we wanna leave you with this reminder, you are worthy of joy. Disease does not define your life. You do.



HELPFUL LINKS:


Instagram - @boltysbazaar


To get on the waitlist for Bolty's next "Designing Our Lives with MG" cohort - https://mgassociation.org/designing-our-lives-w%2F-mg

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